Recently I was contacted by a mother named Zoe, who lives here in Colorado, where I also live. Her daughter Shea, has just been diagnosed with Infantile Blounts Disease. Zoe is doing a great job at gathering information, so that she can be the best advocate for Shea. She is also brave enough to share Shea's Story with all of us... This is what Zoe had to say...
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| Beautiful Shea... |
Shea (18 months) was diagnosed with Blount's Disease (Tibia Vara) in April of 2011. We are trying to find the best answer with the least amount of risk for her treatment. One of her doctors is suggesting surgery but we are getting some other opinions to see if bracing might be an option. Shea has a great spirit and is an amazing lil girl with lots of energy and love to share with the world. Both of Shea's legs are curved the angle is R 20* L 30*. She started to walk at 91/2 months and has been in the 97% for height since she was born but she is not overweight. We tried the Dennis Brown bar for 6 months after being informed she had Internal Tibial Torsion. Due to the fact that she was so young Blount's could not be verified. Shea has had no improvement, and now has the diagnosis of Blount's. We want our lil girl to get a chance to lead a normal active life and are prepared to do anything and everything to make that happen. I want to thank Kira for starting this blog to open people's eyes to this rare condition and having a great support system available for the families that are dealing with this situation. ~
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Shea Playing... if you look closely, you can see the
signs of Blounts Disease
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I am so happy that BHB is a place where our stories can be heard. There are many children who are struggling with this disease. The more we share, the more families we can reach & support.
Thank you
Zoe, for being a voice
for Shea; you are an inspiration!
You can view a video of Shea on BHB's YouTube Channel...
I will be updating within the week about our appointment today. Just wanted to pop-in to let you know.
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