What if... Every time a child was diagnosed with Blounts Disease,
Their parents had a place to go...
That had all of the information on the best care available
in the area where that family lived?
It is possible!
I need your help. I would like to start a database of doctors, physical therapists, orthotists...
And I would like to start with you.
Where is your child being treated?
Who is your child's Doctor?
What type of treatment is your child getting?
( surgical, non-surgical, bracing, PT, etc. )
What kind of brace does your child have?
Who provided that brace?
Are you satisfied with the care you are getting?
Do you need help finding a different provider?
We can all help each other get the best treatment for our kids. Please email me, and tell your story about Blounts Disease. I truly will do everything I can to help you find the answers to any questions you might have... and in turn, I can gain more knowledge, to help more families.
Even if you live outside of the U.S. !!!
I want to hear from you!
Please email me @ BenHasBlounts@gmail.com
Together, we can make a difference; one family at a time!
Are you still accepting information regarding this?
ReplyDeleteYes!
ReplyDelete