We are still waiting to hear back from Western Slope Orthotics on when Ben's new KAFO Brace will be ready. In the meantime though, I have a few things to share...
I'm putting together pamphlets with the help of my friend Amy at Absolute Edge Design Company. She has been nice enough to donate her design services. So soon enough I will have 'Ben Has Blount's' pamphlets to hand out at various places. I am also going to be sending out the pamphlets to try and really spread the word. If anyone can think of a place; or has a place that could offer the pamphlets, please contact me.
Also, I have been a little stressed out knowing that next year Ben should be starting preschool. His big sister goes to a WONDERFUL Montessori School here in town and I really want him to join her. I had a few reservations as far as, would the staff be comfortable helping him his braces... will he be potty trained in time...and of course, how will we pay for two children to be in Preschool??? After talking with the staff at the Montessori School; I was put at ease. Everyone there is showing an interest in Ben and how he is doing. I also learned that because Ben is considered "Special Needs" now, I can probably get him into school through the 'Child Find' program.
So maybe "Special Needs" isn't as awful as I thought last week... Maybe everything is finding it's own way of working out. Maybe Ben can start preschool next fall and be a "normal" kid... And Maybe by then we will have more information about Blounts Disease, and maybe even have contact with another family affected.... Lots of Maybes
For More Information On The Child Find Project... You Can Visit...
http://www.childfindidea.org/
The term "special needs" can be scary, and almost insulting. We all think our children are perfect and admitting that your baby has special needs is hard. I still can't really wrap my head around the fact that most likely Cameron will have special needs. But it doesn't make us love them any less. If anything, we're more of an advocate for them. Isn't that really all they need? Some extra love and compassion?
ReplyDeleteBen may have "special needs" but that only means he might have an "extra special" place in the hearts of those who meet him. More people love him now because they've been given the opportunity to know him, thanks to you and this blog. We love you Kira. And of course, we love you Ben *hugs*kisses*
Was your son considered "special needs" based on just having braces on his legs?
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