If You Or Someone You know Has Blount's Disease, I Really Want To Hear From You! Please Email Me!

Now, there is a place to go... Now, we are no longer alone...

BenHasBlounts@gmail.com

Saturday, January 22, 2011

Why Donating Is SO Important...

Recently I started receiving donations for the 'Ben Has Blount's Medical Fund'... Thank you thank you thank you!!! I wanted to break down a few of the costs that are related to Blount's Disease; so that you all know why donations are so very important...

~Every time we go to the Orthopaedic Surgeon it costs around $350; right now we are going every 8-  12 weeks

~We go to Physical Therapy once a month, and it costs around $300

~ The 'Thera-Tog' Brace that we have been using costs roughly $600

~ The KAFO Brace that we just got fitted for, is going to cost us over $3,000

Keep in mind that Ben only needs the KAFO on one leg right now. This brace will last us approximately one year. These are our costs just since Ben was diagnosed in October 2010. I didn't add the numerous other expenses we accrued from seeing other specialists and buying other braces before we received the correct diagnoses.

Our family is lucky enough to have insurance and a Health Savings Account to cover most of our costs. Right now my focus is too raise as much money as possible and give it to other families I hope to have contact with in the future, I can't imagine finding out that your child has Blount's and not be able to give him or her the treatment they need. I am also working on getting a non-profit tax ID number so that future donations will be tax deductible for those who donate.

Thank you so much to the few people who have donated already! I promise to use all of the donations in the most effective way. If we are lucky, and things keep going well for my family; we will be able to use 100% of the donated money to help another child or children... Again, THANK YOU SO MUCH!!

2 comments:

  1. Beautifully stated Kira! You're such a generous, selfless person.

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  2. Hi,
    Do you know of a place that someone could donate their used leg braces? My son just had his first positive Xray since we were diagnosed. He no longer has to wear his braces at night (or at all!). We'd love to donate these braces but have no clue where to look.

    Thanks
    Jessica

    ReplyDelete