If You Or Someone You know Has Blount's Disease, I Really Want To Hear From You! Please Email Me!

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Monday, February 14, 2011

KAFO Brace...

Well today we made our way down to 'Western Slope Orthotics' to meet with John Morris. He is a super nice guy; and doesn't seem to mind my incessant questioning. The new KAFO brace wasn't as scary as I thought it would be. Still, it was quite emotional, and I found myself ready to cry. Ben wasn't very happy to have a new brace; he kept saying "brace off!" After we had it on and went over how tight to have which straps; we let Ben walk for the first time with it on.... By the time he found the toys he was happy again!

Ben watching us put on the brace.... not very sure what he thinks yet...


This is a close up of the brace right at the knee...


The brace at the foot...


Ben's entire leg in the KAFO Brace...

We have our next PT appointment next week. Hopefully we can figure out how to use this brace in conjunction with the Thera Tog. John, our Orthotist, is going to meet us at Physical Therapy so that the three of us together can figure out what the next step is for Ben. Until then; we are going to be putting Ben in the KAFO brace for a few hours in the morning; and then again in the afternoon so that he can get used to it. By the time we go see Lisa at PT; he will be in it full time. He may even be sleeping in it at some point.

I took a short video of Ben walking in the KAFO Brace for the first time~


video

Thank you to everyone for reading and helping me share Ben's journey. It means SO much... Keep sharing! Keep reading! You are helping my little boy just by reading my blog.... So again, THANK YOU!!

3 comments:

  1. What a Trooper Ben is.....He is so Sweet and very lucky to have such a good Mommy....I pray that his therapy goes by quickly and his little body responds rapidly to his treatment...

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  2. Oh our precious Ben, I am so glad that the orthotist is going with you to physical therapy, it does look like the brace is changing his gait, he has improved so much with the Theratogs, glad to see you are looking at combining them. I am so proud of you Kira, and how much knowledge you have acquired in such a short time. Ben is so lucky that you are his mommy, and we are all so lucky to have Ben in our family. He will be playing and running and forget all about the brace in no time at all!

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  3. Hi! How is Ben doing with the KAFO brace? My 2 year old has Blounts and he is about to start wearing a brace also. I am curious as to what the orthotist told you about the brace design. The orthotist we saw today wanted to put our son in a brace that did not allow him to bend his knee, ever! I said no way and have been researching information on this. Do you have any suggestions? Thanks so much! Hope your son is doing well!

    Alison, Texas

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